Taking care of end-of-life settings

Di Fiore, Angela (2018) Taking care of end-of-life settings. PhD thesis, University of Trento.

PDF (Taking care of end of life settings) - Doctoral Thesis
Available under License Creative Commons Attribution Non-commercial Share Alike.

[img]PDF - Disclaimer
Restricted to Repository staff only until 9999.



End of life care concerns medical services dedicated to incurable patients that are living the last year, or months, of their lives. End-of-life patients have complex social, spiritual and medical needs, and they are usually cared for in family environments, such as home or residential care settings. Nowadays, there is an emerging need of technology to support the collaborative care practices that entangle families and professionals. However, conducting design processes in sensitive contexts like end-of-life environments presents several challenges due to the high social complexity of the field. In this scenario, this thesis explores the realm of end-of-life, in order to inform the design processes in sensitive contexts. This work is based on two different end-of-life contexts: pediatric palliative care and nursing homes. These studies explored two different types of end-of-life services, showing similar care dynamics but also different relational assets. The findings presented in this thesis can inform the conduction of design processes in end-of-life settings by: presenting the recurring organizational, communication and relational issues; analyzing the multifaceted role of technology in such contexts, which can be perceive both an enabler of quality care and a dangerous thing; providing also methodological insights to both embrace the stories of our informants and to also take care of the emotional wellbeing of design researchers.

Item Type:Doctoral Thesis (PhD)
Doctoral School:Information and Communication Technology
PhD Cycle:30
Subjects:Area 01 - Scienze matematiche e informatiche > INF/01 INFORMATICA
Repository Staff approval on:25 Jun 2018 12:50

Repository Staff Only: item control page